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Muscular Dystrophy Resources offered at Muscular Dystrophy Association

Muscular Dystrophy Resources offered at Muscular Dystrophy Association

Provides one-on-one support and information about muscular dystrophy, Amyotrophic Lateral Sclerosis (ALS), and related neuromuscular diseases, including clinical trials, care centers, programs, research and advocacy, summer camps, volunteer opportunities and community referrals.

Physical Address

4800 South Macadam Avenue, Portland, OR 97239

Hours

M-F, 9am-5pm.

Application process

Visit website or call for information.

Fee

None for Resource Center services. MDA Care Centers accept most insurances.

Eligibility

Must have a diagnosis of one of the 43 neuromuscular diseases covered. Includes Myasthenia Gravis, Duchenne Muscular Dystrophy (DMD), Amyotrophic Lateral Sclerosis (ALS), and Spinal Muscular Atrophy (SMA). Summer camps: Ages 8-17.

Languages

American Sign Language

Interpreter services

Service area

Wahkiakum, WA Skamania, WA Cowlitz, WA Clark, WA OR

Agency info

Muscular Dystrophy Association

Provides help with one-on-one support to navigate services, activities, and more. Examples of programs include virtual support groups, summer camps, and a clinic at Oregon Health & Science University to anyone with a form of neuromuscular disease.