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Support Services offered at National Organization for Rare Disorders

Support Services offered at National Organization for Rare Disorders

Provides a clearinghouse of information about rare disorders. Coordinates prescription, co-payment and health insurance patient assistance programs. Provides information through website on medication assistance programs to assist uninsured or under-insured individuals in securing life-saving or life-sustaining medications.

Physical Address

55 Kenosia Avenue, Danbury, CT 06810

Hours

M-Th, 8:30am-7pm F, 8:30am-6pm, EST.

Application process

Apply to a program on the website, or call and follow phone prompts to access information on prescription, co-payment and health insurance premium patient assistance programs. Visit website for information on rare disorders. Hover over "For Patients and Families", then click on "Rare Disease Information".

Fee

None.

Eligibility

Individuals whose income is too high to qualify for WA Apple Health (Medicaid) but too low to pay for their prescribed medications.

Agency info

National Organization for Rare Disorders

Agency is comprised of health agencies, medical researchers and individuals concerned about orphan diseases and orphan drugs. Accumulates and distributes related information on these diseases and drugs.